Transparency - United Kingdom

We believe transparency is an important part of our ongoing collaboration with the health care community, helping to build a community of trust and respect with healthcare professionals, patients, industry peers, stockholders and the public.  

EFPIA

Biogen strongly believes that collaboration with Healthcare Professionals (HCPs) and Healthcare Organisations (HCOs) is crucial to discover, develop and deliver innovative therapies that improve the lives of patients. At the same time, we believe that these interactions must be conducted openly and transparently.

As a member of EFPIA (the European Federation of Pharmaceutical Industries and Associations) and the ABPI (Association of the British Pharmaceutical Industry), Biogen is proud to endorse and uphold the EFPIA Disclosure Code and the ABPI Code of Practice disclosure requirements. In line with the codes, Biogen has been collecting all payments and contributions made to HCPs and HCOs since January 2015.

These payments are published on Disclosure UK, the ABPI's disclosure database, on their website.

 

 

 

Biogen-214754  Date of Preparation: June 2023

Patient Organisation Support

Biogen is proud to work with Patient Organisations and support their efforts to improve the lives of their members and raise awareness of serious medical conditions. We are aligned in enhancing patient advocacy and supporting medical research for the discovery of effective therapies. Below is a breakdown of the support Biogen has provided to Patient Organisations in the UK.

 

2022

In 2022 Biogen contributed £458,799.75 to UK Patient Organisations.

 

Patient organisation Description of Support  GBP Value
Alexander Devine
Children's Cancer Trust
Biogen Foundation - Matching Donation £904.93
Alice's Arc Biogen Foundation - Matching Donation £1,243.96
Alzheimer Scotland Fee - Biogen Patient Advocacy Group Advisory Board 10.11.21 ESE 11468 £378.25
Alzheimer’s Society Sponsorship - Biogen Patient Advocacy Group Advisory Board 10.11.21 ESE 11468 £293.25
Alzheimer's Disease International Fee - 1/19/2022 ADVOCACY STEERING COMMITTEE £291.00
Alzheimer's Disease International Fee - Briefing Series Part 5 Understanding Alzheimer’s Disease - 15 March 2022 - ESE:013904 £319.00
Alzheimer's Disease International Membership - Alzheimer’s Disease International 2022 Corporate Membership £64,344.54
Alzheimer's Disease International Sponsorship - ADI global conference sponsorship £30,000.00
Alzheimer's Society Biogen Foundation - Matching Donation £263.28
Beatson Cancer Charity Biogen Foundation - Matching Donation £101.58
British Heart Foundation Biogen Foundation - Matching Donation £25.03
Cancer Research UK Biogen Foundation - Matching Donation £270.55
Care International UK Biogen Foundation - Matching Donation £16.98
Cystic Fibrosis Trust Biogen Foundation - Matching Donation £49.87
Genetic Alliance UK Sponsorship - Genetic Alliance to support their Rare Disease Day activities - 21476-SP-GEN £5,000.00
Genetic Alliance UK Membership - RDUK Membership £12,000.00
Great Ormond Street Hospital Children's Charity Biogen Foundation - Matching Donation £62.54
International Alliance of ALS/MND Associations Sponsorship - ALS Connect and Partnership Sponsorship £22,500.00
International Alliance of ALS/MND Associations Sponsorship - 21554-SP-GEN - 2022 Webinar Series £13,080.05
International Alliance of ALS/MND Associations Sponsorship - 21742-SP-GEN - 2022 Genetics Roundtable £10,355.63
International Alliance of ALS/MND Associations Sponsorship - 22314-SP-GEN - 2022 Conference (Partnership & Translation) £25,767.00
International Alliance of ALS/MND Associations Fee - XBE PAG Meeting 25th March £2,500.00
International Alliance of ALS/MND Associations Sponsorship - 23252-SP-GEN - 2022 Optimizing Clinical Trial Design Roundtable £9,843.69
International Alliance of ALS/MND Associations Sponsorship - 24338-SP-GEN - 2023 Webinar Series £13,288.38
Macmillan Cancer Support Biogen Foundation - Matching Donation £771.70
Make-a-wish Foundation UK Biogen Foundation - Matching Donation £49.87
Medecins Sans Frontieres (UK) Biogen Foundation - Matching Donation £317.24
Mind (the national association for mental health) Biogen Foundation - Matching Donation £609.79
Motor Neurone Disease Association Sponsorship - 23717-SP-GEN - 33rd Virtual International Symposium on ALS/MND £21,877.84
MS Trust Sponsorship - MS Trust Annual Conference - 27th-29th March 2022 £26,000.00
MSS (Trading) Limited Sponsorship - MS Frontiers Conference 2022 Sponsorship - FC 22059-SP-GEN £9,000.00
Muscular Dystrophy UK Sponsorship - MDUK UCL Translational Research Conference - 21550-SP-GEN £5,000.00
National Axial Spondyloarthritis Society (NASS) Sponsorship - Aspiring to Excellence Programme 2022 £30,000.00
NRAS (National Rheumatoid Arthritis Society) Sponsorship - SMILE-RA Module for 12 Month Period £10,000.00
NRAS (National Rheumatoid Arthritis Society) Membership - Corporate Membership £10,000.00
Parkinson's UK Biogen Foundation - Matching Donation £100.00
Ronald Mcdonald House Charities (UK) Biogen Foundation - Matching Donation £2.49
Shift.ms Sponsorship - “Understanding the impact of MSer Self-care on the MS clinical care experience” £34,965.00
Shift.ms Sponsorship - MSer-led health education: What should MSers expect from healthcare professionals?' £34,000.00
Shift.ms Sponsorship - Partnership with Shift.ms around project 'MSers react' - Research & Science £15,840.00
Shift.ms Sponsorship - Shift.ms The Future of MS clinical care: HCP perspective £16,980.00
Shift.ms Grant - 21837-G-INF - Personalised self-care: Helping MSers identify the priorities in their self-care £15,272.81
Spinal Muscular Atrophy Support UK Fee - TISMA Patient Stories £3,000.00
The Brain Tumour Charity Biogen Foundation - Matching Donation £79.63
The Neurological Alliance Membership - Industry Reference Group membership for 2022 £11,029.50
Young Lives vs Cancer Biogen Foundation - Matching Donation £1,004.37

 

 

 

Biogen-214754  Date of Preparation: June 2023

Contracted Services Provided by the Public

During 2022 Biogen made transfers of value totalling £3,137 to 16 members of the public for fees related to sharing the perspective of the patient.    

 

Biogen-214754  Date of Preparation: June 2023

Healthcare Professional Support

Biogen strongly believes that collaboration with Healthcare Professionals (HCPs) is crucial to discover, develop and deliver innovative therapies that improve the lives of patients. At the core of this relationship is the ability to share knowledge in order to improve patient outcomes. At the same time, we believe that Biogen’s interactions with HCPs must be conducted openly and transparently, as embodied by the principles of the EFPIA Disclosure Code and the ABPI Code of Practice.    

To this end, Biogen supports the decision to publically disclose the payments and contributions made to HCPs. By committing ourselves to the highest standards of integrity and accountability, we look to lead our industry in building trust with the communities we serve.

Payments made from 2015 onwards are published on Disclosure UK, the ABPI's disclosure database, on their website.

 

Biogen-214754  Date of Preparation: June 2023